Monday, October 15, 2012

October 22, 2012

October 22, 2012, is a Monday, time 3:30 p.m., I will meet with the surgeon.  I hope I will be able to get some answers to the thyroid problem.

I have so many questions about what will happen next.  I am sure a biopsy will be done.  I have a greater chance that it will be benign then cancer.  I still know, from what I have read, that the mass will need to be removed and along with it part of the thyroid.   Just how much will be determined once the thyroid is exposed.

These are all things that I have read and partly been told by the Endocrinologist.  I also was told that this surgeon, Dr. Stanley Wilson, is conservative in his approach in regards to surgery.

Is this on my mind?  You betcha! Are we talking about it much?  Not really as there are so many unknowns.

Dad/Sam has other things to concentrate on right now.  He has a bid at the end of October.  He is flying to California, today, October 15.  He will be there until Saturday and fly back to South Carolina, to be here for the appointment on October 22.  Whatever is decided at the appointment, will determine whether he fly's back to California.  Right now, he has a flight back the next day, October 23.

I have a lot of people praying for me and for good results.  I know I will deal with whatever the outcome, as I am strong and have handled major problems in the past.

"It is what it is".  Can't change things so I just have to deal with it.  It is still scary about the unknown!  I am one that needs to know exactly what will happen, so I can organize it in my mind, research and learn more, have things in place.  I still will get nervous and anxious, but I will know more.

Now to wait until Monday

Tuesday, October 9, 2012

Changes Part 2

I don't have great news to write about right now.  My thyroid mass grew from 3.4 cm to 3.7 cm.  I am being referred to a surgeon and I am awaiting his call to set up an appointment.  I really don't know what will happen or when.  It is so hard to wait for something to happen as you want that something to happen now.

They say patience is a virtue and I do have patience most of the time.  I can wait in a doctor's office for quite awhile when he is behind, as long as I know, I can deal with traffic, I can wait for that repairman.  I can get a chance to reschedule if necessary.  This other waiting, waiting for that phone call to continue on with a problem, is so difficult.  You can't reschedule something that might be wrong with you.

I don't know why my neurologist in California did not say something to me.  It wasn't his right to dismiss it.  I had the report and yes, it did say that I had a large mass, but I did not know that this was an issue that should have been checked.  What made the neurologist I have here, suggest for me to see someone?  Were they more aware of the necessity?  I really don't know the answer to the question.  I am angry though that I wasn't given the option to decide for myself in California.  What made that doctor decide that this was not something to look at or not to feel the need to even discuss it with me?

I know that is history or as I have said "water under the bridge".  I have to deal with the here and now.  So I wait!  I want to call so badly and get an appointment.  This surgeon may not have all the results yet or hasn't had time to review.  Why can't an appointment be made anyway?  Patience is a tough word for me right now.

I am trying to stay busy.  I have been typing up notes for Sam to take for his bid in California for a hospital. This is another issue, Sam wanting to fly to California for this bid and staying until the end of the month of October.  He wanted to leave this week, but changed and stayed an extra week.  He really needs to leave next Monday and will be there until November 1.  I would like to go but things are so much up in the air.

Life has thrown a curve ball.  How do you deal with the uncertainty?  I guess you have to trust in God, your friends support, and to keep reminding yourself that you are strong and you will get through it.

It is still hard to wait....

Wednesday, September 26, 2012

Changes

Fall has arrived.  We are having warm temperatures during the day and cooler temperatures at night.  We actually opened our bedroom windows last night instead of using air conditioning.  This has not happened for a very long time.

The electric bills have not been extremely high because our house is very efficient with keeping a good even, cool temperature.  Thank goodness!

I had three MRI's done in the last couple of weeks.  One for my head, one for the spine, and one for my neck.  Everything is stable with the MS but the MRI showed a mass on my thyroid, about an inch and a half.  The doctor reading the MRI or my Neurologist could not figure out what it was showing, so I was asked to go to an Endocrinologist to have it checked.

Being in Bluffton, South Carolina has great advantages with location, easy living, and good friends that were made.  The biggest problem, though, is finding good doctors.  I have had to drive to Savannah, Georgia, for some appointments, which is about 30-40 minutes, which isn't a bad drive.  I have my Neurologist in Port Royal, SC, which is about the same distance from us only going North.

The other issue is finding a specialist that takes our insurance too.  I thought I found one in Savannah, who takes our insurance, said they were taking new patients, and had my Neurologists office send all my information.  I was told I would be called to make an appointment, either on Monday afternoon or sometime on Tuesday of this present week, September 24 or 25.

I waited and waited, but I did not hear from anyone.  By early afternoon, on Tuesday, I placed a call to the doctor's office in Savannah, Georgia.  I was put into voice mail and I left a message with her nurse.  I did not receive a call back on Tuesday and I am still waiting for a call today, Wednesday.  I even called my Neurologist, on Tuesday late afternoon, to let them know I had no response yet from this doctor and they placed a call to get someone but also was put into voicemail.  How can a doctor's office calling another doctor's office, not get a response back?

S o o o o, I let my fingers do some walking on the Internet to find a doctor maybe in Charleston.  Charleston is a longer drive, about 2-1/2 hours but we are willing to go anywhere to get the help we might need.  I did find another doctor in Charleston, who takes our insurance, called my Neurologist's office today, gave them the information, and they were going to try and get an appointment for me.  Again, I have not heard a thing!  If this new doctor I am trying to get, does not respond either, I have another one to call.  Why is this being so hard?  Can't someone understand that the person who has an issue with any part of their body, needs to have an answer to put their mind at ease or for them to determine what their next step would be, to handle the problem?

This is so frustrating!!!!

I have hooked up with a local support group.  I am not actually a leader for the group, but someone that will help them out.  The group is mainly made up with people from Sun City, though there are a couple of us "outsiders".  It has been hard to fit with this group, as conversations tend to go with the doings at Sun City and they want to socialize.  So far, not a lot has been accomplished, but I hope I can help out with this issue.

I have a hard time following conversations when multiple conversations are going at once.  I get distracted, from the main speaker, when people are having "side bar chats".  I have decided now to ask people to not talk while someone is talking.  As I usually say, "One Conversation at a Time".  You would think that this would be common sense but I also realize the need to say something before it is forgotten.  We just have to learn to take our turns.
      

Wednesday, September 12, 2012

Where is the time going?

It is almost Fall!  The start of craft shows, warm apple cider, fires in the fireplace, cooler nights, and beautiful days.  Before you know it, it will the holidays.

We have had a busy summer this year.  We spent a good portion of July in California and in August, we had Gabe and Sophia, our grandchildren, stay with us for a few days.  Tony and Abby were finally able to see our house in South Carolina and that was very special.  We don't get a chance to see any of the family much, so this visit was wonderful.

We continue to change things around the house.  Right now, a bookcase is being built for either my craft room or maybe the office.  We are not sure where it should go.  The craft room is looking pretty good as we had put up a shelf above my work table, that holds baskets right now but it looks great.  It has given the room a more finished look.  It is still a work in process.

I will have a girlfriend from High School visiting this weekend, September 15-18.  We have stayed in touch all these years, since 1971.  I have a few other friends that I also stay in touch with from High School but Cathy will be the first one to visit.

I have to come up with ideas for sightseeing.  She likes history and there is definitely history around here.  We only have a couple of days to visit so we need to plan the best sites in a short amount of time.  I guess it is time to let my fingers to do the walking on the Internet.

I did get good news about my eyes.  They are both doing just fine.  The specialist said he saw a couple of small spots that looked to be swelling but it was not anything for him to worry about right now.  I am to have my ophthalmologist keep an eye on them, which I see every three months.

I also had two MRI's done, one last week for my brain, and this week for the neck and spine.  I will see  my neurologist in a couple of weeks to get the results.  I am still on the oral drug called Gilenya.  This may change once I see the doctor.  I have had issues with walking and stumbling but I haven't fallen, which is a very good thing.

We keep looking at trips or cruises but we haven't decided on anything.  My issue is the walking of places.  I would like to see so many different things but I have to either not see them or to figure out a way to do so.  So far, the figuring out has not been very successful.  It is so very hard to not be able to do things without a second thought.  I have to plan for my energy and the length of time of walking.  I have to make sure I am not in really hot heat for a long time without getting my body core back down to better temperature.  If not, I won't be able to function for very long.  You would think that the cold would be better for me, but if the cold is too cold, my legs won't function either.  Can't win either way!

We are doing well in South Carolina.  We have really gotten into the slower pace.  We don't seem to worry about things as much as we did in California.  Going out on the boat is so relaxing.  We go about 4 mph. and that is all the way in speed.  It is OK, as we have nothing else to worry about right now.




Monday, August 13, 2012

Where did the summer go?

I just saw that I have not blogged for over 2 months.  WOW!  It wasn't because I didn't have anything to say, it was because I was away from my computer.

We spent a good portion of July in California.  There was bid that was being worked on and it was important that Clark got it.  The work has been slow coming into the company and things were getting tough regarding whether to lay anyone off or where to cut expenses.  The stuff that most companies have had to face with this economy.

I am proud to say that the job was awarded to Clark for about $127 million dollars.  The job will be taking about two (2) years to complete.  It should keep people working for awhile.

The weather has been quite warm to down right hot around here.  We have been told to wait until September/October as the weather will become very comfortable and enjoyable to do things outside again.  I can't wait.

We are having Gabe and Sophia with us for a week.  It has been an adjustment for everyone but we are working through it and I think things will get better and better as time goes on.  We were excited for them to stay with us as they were to spend time with us.  Sophia helped her Pop Pop clean the Duffy boat inside and out.  She was a big help in sweeping and washing things off.

Gabe, Sophia, and Pop Pop are at the swimming pool again today.  Many times they want to go to the pool a  couple of times a day.  There is a lazy river set up as part of the pool and the current is pretty strong.  You take a floaty to hang onto and away you go.  I had a hard time getting my feet under me to stand up to get into slow water.  It was a fun time especially going through the little water fall.  Sophia wanted me to do this with her many times.  I just  have an issue with floating anyway.  I can even float in a bathtub.

This was actually my first time in the pool.  I wasn't sure how I would handle it but I did OK.  The hardest part for me was walking on the pool deck.  I was catching my toes and it didn't feel very good.  As good as it felt in the pool, we had to get out because another rain storm was coming again.  No lightening but we did hear thunder.  We made it back home before the first rain drops fell.

We had asked Gabe and Sophia what they wanted as far as dinners were concerned during the week.  The first request was for TACO's.  I made it up for dinner and there wasn't anything left for leftovers.  Gabe made sure of that!  We all enjoyed the dinner as Dad and I haven't had taco's in a very long time. See what the kids are helping us with--having dinners that we hadn't thought about having.

Our next activity will be finding the Putt-Putt golf.  There are three on Hilton Head but we are trying to decide on which one to go too.  I am pretty sure we have narrowed it down but I am not sure if the trip will be today (Monday) or tomorrow (Tuesday).  The time is getting close for our afternoon showers.

Frankie has become a fixture on our Duffy boat.  He always wants to get "on board" and even goes to the slider at the back door to try and say he wants to go out on the boat.  It happens everyday about 5:00.  Then he will tell us when it is about 6:00 for dinner.  This is a smart dog, for sure.

All the houses on our street have been finished.  The one next door I was so happy to see done as everything the workers were using usually wound up in our yard or they just took over our space for their own supplies.  Irritating to me but not to Dad.  He works in construction so he didn't see a problem.  In fact, even the noise of the saws and the air guns didn't phase him a bit.  The doors did remain shut just the same.

All the neighbors are great.  We have get togethers at each others home usually once or twice a month.  It is nice to be able to do that now.  In California, people came home, drove into their garage, door goes down, and you never see them again.  Such a difference with the friendliness and the waving hello to everyone.  This is becoming our home more and more each day.

Saturday, June 2, 2012

Proof Reading

I need to take the time to proof read my posts.  I usually do but this last post I didn't.  I read it after it was sent and boy, I did mess up some.  I do hope everyone could get the idea of what was being said.  My mind was thinking faster than I was typing or I went back and read a section, made changes, and did not check to make sure everything flowed correctly, and I left behind extra words, and no sense at times.

Just to update on the last message about June.  I have my ticket to California but a place to stay has not been determined yet.  Clark has a condo in Long Beach that employees can stay in from time to time.  Sam will be inquiring about this condo for us to stay in while there instead of a hotel.  If we can get this, then we will bring Frankie.  We both do not want to leave him for this week, in a cage, without making it comfortable for him.  He is like a puppy with an attitude.  Frankie just will not understand why he is being left.  On short trips, this is OK as he also knows we will be back.  With leaving him at the vet for a week, having his teeth cleaned too, while we are gone, will make the situation and his going to the vet, a terrible experience.  (I know I would not like it).  Frankie is part of the family.

I have so many little projects to get down around the house and I don't know where to begin.  I know, at the beginning...he he.  I just need to concentrate on one thing at a time instead of trying to do all the projects at once; nothing is resolved at that point.

Today is a new day and a renewed desire to finish at least one of the projects.  Hey, It's a start!  One of the bigger projects is to update my paper address book, update the house phones with names and numbers, update our cell phones with the same information, and then put everything on the computer's address book.  Can you see why it is taking me so long to finish.

I then have to move all my documents, photos, etc. from the mac and me accounts to I Cloud as Apple has decided to stop using the @mac.com and @me.com.  What a chore this one is too!  I read the directions and it is also in multiple steps.  I will need to sync my I Phone and I Pad to the computer, check to make sure everything has been moved to where it should be, and then do the update.  Sam doesn't have the patience to mess with this chore.  I don't mind doing it, but I dislike being interrupted in my concentration.  This happens frequently...

Why can't life be a little easier?  I guess we wouldn't grow and learn if it was too easy.  This will make one a better person; one of which should be able to handle anything that might come along.  I still would like to see how that easier feeling, feels like, but I just don't think it will be happening anytime soon.

Friday, June 1, 2012

WOW, Its JUNE!

Ok, that sentence is nothing really special except we are in the sixth month already.  Today is also the start of hurricane season.  I didn't think I would be talking or thinking about hurricanes.  Our newspaper gave the list of names for the hurricanes this year.  Chris will be the next name used with Tony further down on the list.  Hmmm, I wonder what type of hurricanes they will be...

We will be celebrating our wedding anniversary this year in California.  We will be there for about a week.  Frankie won't be able to go with us this time.  He will have to be boarded at the Vet.  He never has had to do this as he was boarded at someone's home.  We are concerned how he will take this change.  He will be put into a small cage and will not have the freedom he usually has while at home.  We both wish we could take him but the California plans will not allow it.

My craft table has been started.  It has been so warm to hot, the last few days (take goodness for A/C), that it makes working in the garage almost impossible.  At least a little bit has been done so I can wait a little while longer.

Our neighborhood is changing again.  The lot next to us had been sold and the house is now going up.  It will be the last house in our section.  We are missing the openness that was provided to us when the house wasn't there.  Of course we have said to ourselves, we should have purchased that lot.  If we had, we would have had to pay HOA fees in addition to our present house.  We pay two separate fees now.

I am pretty sure we have all of our doctors set up now.  I have another new appointment to go too but the rest are complete.  We saw our new dentist on Thursday and it was a fantastic experience.  They used different tools.  To take pictures of your mouth, the hygienist used a hand held camera that was the size of a wand.  The pictures taken went straight to their computer.  They now had a pictures of your teeth and then could add any further detail.  The office also had something that looked like a black light that she used to look into your mouth.  This device could tell whether you had cavities or problems with your mouth for the dentist to take a look further.  I go back in two weeks to have a spot on the inside of my left cheek rechecked to see if it is still there or has gone away.  Of course, my mind is going crazy but I was also told not to worry about it.  If it was still there, then the next step will be to an oral surgeon.  So, I wait.

This office, though, has been the best we have ever gone too.  They all are so pleasant, the cleaning was easy and not rough as the last one was in California.  They have TV's in each exam room.  One of the rooms is for kids only and they show cartoons or shows that would interest the age of the child.  Where was this when the kids were growing up?!

We had a problem with the Duffy boat the other day.  We took it out and before we went too far, we lost power or just about.  We called the gate house to try and find someone to help.  We were had to go backwards in order to go forwards.  The boat corrected this situation so the boat could go forward as it should have been doing, but it did it on its own.  We made it back to the house but just barely.  A repair service was contacted and we learned that the Duffy boat needs to be on a charge all the time.  We were told the batteries just ran out of juice.  We would charge the boat for most of a day or after taking it our and then take it off the charge at night fall.  The boat has now been on a charge for the last couple of days but one particular person is anxious to get back out on the lake.  Sunday will be the day.

We had Karen and Eddie spend the Memorial Day weekend with us.  Karen had a conference in Washington DC and was able to stop for a visit on her return home.  They did have to cut it short when Beryl decided to pay South Carolina, Georgia, and Florida a little visit.  Karen and Eddie were able to make it back home before the heavy rain started.  Florida did lose some power but we didn't have any problem.  Beryl started as a tropical depression, then a tropical storm, and almost to hurricane force, Category 1, status.  It stayed a storm when it reached land fall and slowly left the area after drenching the states with much needed water.  Everyone has been dealing with drought conditions, that this soaking was a welcomed relief.

June is now starting to look full already.  Between appointments, social events at the clubhouse, and trying to complete projects, we are busy.  What happened to taking it easy?