I had a long appointment today but that was to be expected as a new patient. Dr. Bettler, who is German and has a great accent and is good looking (just sayin'), went over my records but did not want the paper version as he puts all his notes on his computer. This way he can pull up any of my information whenever or where ever he needs it.
He suggested for me to go on Gilenya, which is the first oral drug for MS. I did talk to him about people dying after taking this drug but he said it was only 5 people in Europe and they really aren't sure if it was the drug or something else. He also said the first dose is given in the doctor's office and you have to wait there for 6 hours to make sure you are not having any problems.
So I have reading material and other exams to go through before I start. This process will not be a quick one. Dr. Bettler said that the Avonex I am on now is not a strong medication anymore. Because I have had several flare ups recently, he said the Avonex is not working for me. He even said if he had a new patient, that person would be started on Gilenya. This drug it is to help stop the flare-ups and then I don't have to have steroids. That would be a very positive thing as I have had a lot of strong steroids by IV.
With one doctor down, I now have 5 more doctors to find and make appointments. Several of them are not close by but will require a little bit of travel. Savannah or Hilton Head are two of the locations which are both about a half hour or so away. Not too bad!
Thursday, March 29, 2012
House sold and a closing date
The CA house sold after we left and it should be closing next week. What a big relief! This has been a long process but one we are hoping to have finished soon. The buyers are very excited to get in and I really hope things will go smoothly on closing day. We haven't had to pay too much for any repairs - just some termite damage. Termites is an ongoing problem there and one we will not have to worry about anymore. YEA!
We are almost out of boxes. We just have one more bedroom to set up and it will actually be my craft room. Right now, we have to figure out how to get storage for all the scrap books I have that I haven't been able to do because of having to keep the CA house all clean and neat with the house on the market. Every time I would pull everything out then I would have to put every thing back because someone wanted to see the house. What a pain that was so I just gave up trying.
I have my first neurologist appointment today with a new doctor here in SC. I have a stack of medical records, starting from 2002, and a couple of CD's showing a couple of my MRI's to give him. It may be too much but at least I have something and the office will not have to wait for my records. I am a little nervous about him as I never received a recommendation for him except by the National MS Society. You would think that should be a good recommendation I could go by, but you never know. How is he around patients, what is his background with MS, etc. Questions I hope to have answered today. If you don't feel comfortable with your doctor and have confidence in him or her, then it makes one question whether you will be able to call with a question or concern and he or she will respond.
On Monday, April 2, will be a VERY important day for Clark Construction. They will be presenting their proposal for the construction of the Edmonton Oilers Arena in Edmonton, Canada. I have seen the concept photos of what the owners want and it is a very futuristic building. I will make sure it will be OK to share photos and when I get the OK I will do just that.
Another flight to Canada will be occurring this Saturday with the presentation on Monday. It will be a large group, each giving their own piece of the the bid. A lot of stress is taking place right now and I need to be very careful of what I say, or do, or even ask for, as I never know what kind of reaction I will get. I know his mind right now is on that presentation. The pressure is tremendous. The company wants this job! I know it doesn't take one person but a team to accomplish this but it doesn't mean any less pressure.
It is starting to get warmer as the days are going by. Our house seems to stay pretty cool which is a good thing right now but I do know it will just get hotter. How will I do? Well, I have a couple of cooling vests to use and AC. I could also go to the clubhouse and read to use their AC. I will make it work or just deal with it the best I can.
A house will be started right next to us shortly. I am not ready for this to happen. We have had problems with the dust and noise from the completion of another house just a couple of lots over. Can you just imagine what the noise and dust and mess we will have and right next door? I can't even keep my house clean and dusted NOW! Maybe this would be a good time to go back to California for three months.
Our house is looking a little crowded with all our stuff now. I am sure it will be fine once we have things in place, pictures on the walls, and everything stored or put away. Right now ... the house could use some help. I try to work as long as I can but my legs won't let me go as long as I want. This may be a good thing as it causes me to take a break but I just sit and look at what needs to be done. We have all the time in the world to get it finished and I am sure it will be an ever changing project.
We are almost out of boxes. We just have one more bedroom to set up and it will actually be my craft room. Right now, we have to figure out how to get storage for all the scrap books I have that I haven't been able to do because of having to keep the CA house all clean and neat with the house on the market. Every time I would pull everything out then I would have to put every thing back because someone wanted to see the house. What a pain that was so I just gave up trying.
I have my first neurologist appointment today with a new doctor here in SC. I have a stack of medical records, starting from 2002, and a couple of CD's showing a couple of my MRI's to give him. It may be too much but at least I have something and the office will not have to wait for my records. I am a little nervous about him as I never received a recommendation for him except by the National MS Society. You would think that should be a good recommendation I could go by, but you never know. How is he around patients, what is his background with MS, etc. Questions I hope to have answered today. If you don't feel comfortable with your doctor and have confidence in him or her, then it makes one question whether you will be able to call with a question or concern and he or she will respond.
On Monday, April 2, will be a VERY important day for Clark Construction. They will be presenting their proposal for the construction of the Edmonton Oilers Arena in Edmonton, Canada. I have seen the concept photos of what the owners want and it is a very futuristic building. I will make sure it will be OK to share photos and when I get the OK I will do just that.
Another flight to Canada will be occurring this Saturday with the presentation on Monday. It will be a large group, each giving their own piece of the the bid. A lot of stress is taking place right now and I need to be very careful of what I say, or do, or even ask for, as I never know what kind of reaction I will get. I know his mind right now is on that presentation. The pressure is tremendous. The company wants this job! I know it doesn't take one person but a team to accomplish this but it doesn't mean any less pressure.
It is starting to get warmer as the days are going by. Our house seems to stay pretty cool which is a good thing right now but I do know it will just get hotter. How will I do? Well, I have a couple of cooling vests to use and AC. I could also go to the clubhouse and read to use their AC. I will make it work or just deal with it the best I can.
A house will be started right next to us shortly. I am not ready for this to happen. We have had problems with the dust and noise from the completion of another house just a couple of lots over. Can you just imagine what the noise and dust and mess we will have and right next door? I can't even keep my house clean and dusted NOW! Maybe this would be a good time to go back to California for three months.
Our house is looking a little crowded with all our stuff now. I am sure it will be fine once we have things in place, pictures on the walls, and everything stored or put away. Right now ... the house could use some help. I try to work as long as I can but my legs won't let me go as long as I want. This may be a good thing as it causes me to take a break but I just sit and look at what needs to be done. We have all the time in the world to get it finished and I am sure it will be an ever changing project.
Tuesday, March 27, 2012
New Blog Name
New blog name! Now that we have moved from California to South Carolina I needed to update. South Carolina Doings!
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